The Importance of Community Support for Lipedema

Today, I have an excerpt from an interview with Rebecca Griffeth from our Lipedema Worldwide Summit that was held in 2016. Rebecca is a lipedema lady from the US who was thrilled to suddenly find her tribe when she went to the 1st International Symposium on Lipedema in NYC in 2015. In this excerpt, she shares how she was distraught with the sudden onset of lipedema a year prior and how she learned to advocate for herself with the support of her family and various support groups.

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About the Podcast

Living Well with Lipedema

Lipedema, the disease they call fat, is a chronic fat disorder that affects 17 million women in the USA and as many as 350 million women worldwide. It is often mistaken for simple obesity. Generally under-recognized and misdiagnosed, symptoms include pain, swelling and weight gain disproportionately distributed in the thighs, buttocks, legs, and hips with a smaller upper body. Lipedema fat is resistant to diet and exercise and without intervention progresses and worsens over time. This flash briefing offers tips, news, and updates with the founder and director of Lipedema Simplified, Catherine A. Seo, Ph.D., Lipedema Project Board President and Director of Research, Leslyn Keith, OTD, CLT-LANA, and guest experts. Please note DISCLAIMER The information in Living Well with Lipedema is provided for informational and educational purposes only.

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About your host

Catherine Seo

About CATHERINE SEO, PhD
Catherine is Founder & Director of Lipedema Simplified & The Lipedema Project and a professor of psychology. She produced and directed the documentary, The Disease They Call FAT, and was a co-author of the book, Lipedema-The Disease They Call FAT: An Overview for Clinicians. She holds a doctorate in Psychology with a concentration in Media. She has developed online courses on lipedema for patients and healthcare professionals as well as multi-media learning tools since 2013 and is the Director of the MasterClass Program, courses and webinars.

About LESLYN KEITH, OTD, CLT-LANA
Leslyn is President & Director of Research for The Lipedema Project, an instructor in lymphedema therapy for Klose Traning and Consulting, and has a private practice in lymphedema/lipedema therapy. She has completed research about lifestyle change, including a ketogenic way of eating, for participants who were diagnosed with lymphedema and obesity. Leslyn has a doctorate in Occupational Therapy and has been treating lymphatic disorders since 2000.