Episode 1535

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Published on:

17th Oct 2024

Proposed Framework for Research Case Definitions of Lipedema

Today, I have an excerpt from a presentation by Dr. Stanley Rockson at one of Lipedema Simplified’s Heart to Heart virtual events. Dr. Rockson is the Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University School of Medicine. As a principal investigator or co-investigator, he has been involved in numerous clinical trials researching various aspects of lymphatic disease, vascular biology and cardiovascular medicine. He is also Editor-in-Chief of Lymphatic Research and Biology and sits on the editorial board of Angiology and works closely with National Institutes of Health, in an advisory capacity to advance the agenda for lymphatic research. He has authored more than 250 scientific papers, reviews, book chapters, and books devoted to various aspects of lymphatic biology and disease, vascular biology, and cardiovascular medicine. In this excerpt, Dr. Rockson talks about the challenges we face as we try to understand the diagnosis and treatment of lipedema and his hope that future research will answer these questions.

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About the Podcast

Living Well with Lipedema
Lipedema, the disease they call fat, is a chronic fat disorder that affects 17 million women in the USA and as many as 350 million women worldwide. It is often mistaken for simple obesity. Generally under-recognized and misdiagnosed, symptoms include pain, swelling and weight gain disproportionately distributed in the thighs, buttocks, legs, and hips with a smaller upper body. Lipedema fat is resistant to diet and exercise and without intervention progresses and worsens over time. This flash briefing offers tips, news, and updates with the founder and director of Lipedema Simplified, Catherine A. Seo, Ph.D., Lipedema Project Board President and Director of Research, Leslyn Keith, OTD, CLT-LANA, and guest experts. Please note DISCLAIMER The information in Living Well with Lipedema is provided for informational and educational purposes only.
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Catherine Seo

About CATHERINE SEO, PhD
Catherine is Founder & Director of Lipedema Simplified & The Lipedema Project and a professor of psychology. She produced and directed the documentary, The Disease They Call FAT, and was a co-author of the book, Lipedema-The Disease They Call FAT: An Overview for Clinicians. She holds a doctorate in Psychology with a concentration in Media. She has developed online courses on lipedema for patients and healthcare professionals as well as multi-media learning tools since 2013 and is the Director of the MasterClass Program, courses and webinars.


About LESLYN KEITH, OTD, CLT-LANA
Leslyn is President & Director of Research for The Lipedema Project, an instructor in lymphedema therapy for Klose Traning and Consulting, and has a private practice in lymphedema/lipedema therapy. She has completed research about lifestyle change, including a ketogenic way of eating, for participants who were diagnosed with lymphedema and obesity. Leslyn has a doctorate in Occupational Therapy and has been treating lymphatic disorders since 2000.